關於TSCAHK

協會成立於 2015 年 5 月,由患者及家屬組成,期望加強患者、家屬及醫護人員的溝通,支援患者和家屬,使患者得到適當的治療,以及增加公眾對這病症的認識。現有會員有近 40 人。彭懷安先生為協會的愛心大使,最近更獲得高永文醫生和華星冰室簡銘進(民迪) 先生的支持,擔任榮譽顧問。

Our Association, made up of TSC patients and their family members, was founded in May 2015 with the encouragement and advices of Professor Godfrey Chi-Fung Chan, Head of the Department of Paediatrics and Adolescent Medicine, Li Ka Shing Faculty of Medicine, University of Hong Kong. Our aim is to promote mutual support among ourselves and to win community support by fostering public understanding of the little-known disorder of TSC.While we operate in Hong Kong, we have also been joining awareness efforts in mainland China as well as Taiwan.